Patient Advisory Board
The PAB is an essential part of Soft Bones CanadaΓäó. This board, consisting of patients and caregivers living with HPP, acts as a voice for all HPP patients and helps to ensure that we are meeting the needs of those impacted by this rare disease in Canada and internationally.
As such, the PAB can make recommendations about our annual goals and plans. In addition, they play a part in planning events and promoting Soft Bones CanadaΓäó.
We are always looking for new people to add their voices and talents to our team. If you are interested in getting involved please let us know by emailing firstname.lastname@example.org.